Suné was born on 9 January 2010 at 33 weeks because of placenta rupture. She was admitted to Neonatal ICU.
After 24 hours in ICU her lungs could not cope anymore and she was resuscitated. She was placed on an oscillator (ventilator). The paediatricians tried several times to wean her from the oscillator but where only successful after 2 and half months. During this time Suné was resuscitated 3 times during which her lungs and heart failed.
During the time on the oscillator Suné lost her suction reflex and a gastrostomy tube was inserted into her stomach with which we feed her.
Suné was in ICU for a further month on a CPAP machine (which assist with breathing) and after that on continuous oxygen. After 109 days Suné came home on the 27th of April 2010 still dependant on oxygen. In 2010 Suné was admitted to hospital for a further 10 times with pneumonia, bronchiolitis, respiratory need and the Adeno-virus.
She was dependant on oxygen for the first 2 years of her life after which we were able to wean the day oxygen. She still sleeps with oxygen every night. We have a suction apparatus at home to help her get rid of excessive secretions and she is also still dependant on tube feeding through her stomach.
Suné needs the following on a regular basis: occupational therapy, speech therapy, physiotherapy as well as her night oxygen. She visits the following specialists on a regular basis: Paediatrician, Paediatric Lung specialist, Paediatric Neurologist, Neurosurgeon, Paediatric surgeon, Paediatric Orthopaedic surgeon, Dietician, Eye specialist and Ear, nose and throat specialist. Fees range from R800 to R1500.
We get good support from her medical aid but the funds are just not enough for Suné's day to day needs. This includes her nappies, specialised feeds, oxygen consumables, aids for example walking aids, standing frames etc.
With regards to Suné's lungs, she was diagnosed in 2014 with Bronchiectasis. Her lungs are still growing and are much stronger than in 2010, but we still need to be careful for infections...as each infection can cause more damage. We believe that with God's healing her lungs will still heal fully. She will be a healthy young girl who will be able to show how God's still does miracles today!!!
In July 2011 Suné was also diagnosed temporary with Cerebral Palsy (CP) by a neurologist. We say temporary because we believe that God will heal Suné completely and that she will be able to be a normal child, playing and laughing like her sisters. At the moment she can crawl, play, climb up on couches etc. She can't talk but we are sure this will still happen. She doesn't take any fluids or food orally.
We as a family, try to give Suné the best possible care available. Our community's support cannot be ignored. We are so thankful for every prayer, message of encouragement and donation that comes her way.
Our family thanks God every day for our miracle baby. She is an essential part of us who reminds us each day how thankful we must be for what we have. Our Creator will never stop loving and caring for her. We will never stop believing in God's HEALING power and we know it is meant for Suné as well!!
Phil 4:13 "I can do everything through Him who gives me strength." - And we know that Suné will be able to do everything through God who will give her strength.
For any further information, please contact Verné at [email protected]
After 24 hours in ICU her lungs could not cope anymore and she was resuscitated. She was placed on an oscillator (ventilator). The paediatricians tried several times to wean her from the oscillator but where only successful after 2 and half months. During this time Suné was resuscitated 3 times during which her lungs and heart failed.
During the time on the oscillator Suné lost her suction reflex and a gastrostomy tube was inserted into her stomach with which we feed her.
Suné was in ICU for a further month on a CPAP machine (which assist with breathing) and after that on continuous oxygen. After 109 days Suné came home on the 27th of April 2010 still dependant on oxygen. In 2010 Suné was admitted to hospital for a further 10 times with pneumonia, bronchiolitis, respiratory need and the Adeno-virus.
She was dependant on oxygen for the first 2 years of her life after which we were able to wean the day oxygen. She still sleeps with oxygen every night. We have a suction apparatus at home to help her get rid of excessive secretions and she is also still dependant on tube feeding through her stomach.
Suné needs the following on a regular basis: occupational therapy, speech therapy, physiotherapy as well as her night oxygen. She visits the following specialists on a regular basis: Paediatrician, Paediatric Lung specialist, Paediatric Neurologist, Neurosurgeon, Paediatric surgeon, Paediatric Orthopaedic surgeon, Dietician, Eye specialist and Ear, nose and throat specialist. Fees range from R800 to R1500.
We get good support from her medical aid but the funds are just not enough for Suné's day to day needs. This includes her nappies, specialised feeds, oxygen consumables, aids for example walking aids, standing frames etc.
With regards to Suné's lungs, she was diagnosed in 2014 with Bronchiectasis. Her lungs are still growing and are much stronger than in 2010, but we still need to be careful for infections...as each infection can cause more damage. We believe that with God's healing her lungs will still heal fully. She will be a healthy young girl who will be able to show how God's still does miracles today!!!
In July 2011 Suné was also diagnosed temporary with Cerebral Palsy (CP) by a neurologist. We say temporary because we believe that God will heal Suné completely and that she will be able to be a normal child, playing and laughing like her sisters. At the moment she can crawl, play, climb up on couches etc. She can't talk but we are sure this will still happen. She doesn't take any fluids or food orally.
We as a family, try to give Suné the best possible care available. Our community's support cannot be ignored. We are so thankful for every prayer, message of encouragement and donation that comes her way.
Our family thanks God every day for our miracle baby. She is an essential part of us who reminds us each day how thankful we must be for what we have. Our Creator will never stop loving and caring for her. We will never stop believing in God's HEALING power and we know it is meant for Suné as well!!
Phil 4:13 "I can do everything through Him who gives me strength." - And we know that Suné will be able to do everything through God who will give her strength.
For any further information, please contact Verné at [email protected]